Manaʻo nā mākua o nā keiki me ka maʻi type type 1 inā hiki ke mālama i kēia maʻi koʻikoʻi me ka ʻole o nā inikua o kēlā me kēia lā. Ua haʻi ʻia ka lāʻau lapaʻau inā ʻaʻole hiki kēia. Pau ka wā o ka meli, a ʻaʻohe hiki ke hana hou ke ʻole me ka ʻina hana no ka insulin. Eia nō naʻe, ua hōʻike ka hana i kahiʻai haʻahaʻa-liʻiliʻi i hiki ke hoʻolōʻihi i ka hanilima no ka manawa lōʻihi. Inā e hoʻolilo i ke keiki i kēia meaʻai, a laila ʻaʻole hiki ke kiʻi ʻia ka insulin i nā makahiki he nui, a hiki paha i kona ola a pau a hiki i kona wā ʻelemakule.
Hoʻokumu ka pūnaewele Diabet-Med.Com i kahi meaʻai haʻahaʻa-haʻahaʻa haʻahaʻa no ka kaohi o ke ʻano type type 1 a me ka type 2 ma waena o nā mea maʻi ʻōlelo Lūkini. ʻAe kēia meaʻai i ka poʻe me ka maʻi maʻi e mālama mau i nā kō koko koko maʻamau, e like me nā mea olakino. Inā hoʻololi ʻoe i ka ʻai o kāu pēpē mai nā lā mua o ke ʻano maʻi type 1, hiki iā ʻoe ke hoʻonui i kou meli, hiki i ka ad infinitum. ʻO kahi ʻōlelo ma hope aʻe he ninaninau me ka ʻohana e hele nei i kēia ala, a ʻo kā lāua keiki i mau ʻoi aku ma mua o hoʻokahi makahiki ʻaʻole he insulin. Hōʻike nā kauka ʻaʻole lākou i ʻike i kekahi mea e like me ia ma mua. Akā, ʻaʻole lākou e wikiwiki i ka hoʻololi ʻana i kā lākou ala i hala i ka mālama ʻana i ka maʻi type 1 i nā keiki.
ʻO Kirovograd kekahi kūlanakauhale ma ka waena o Ukraine me ka nui o kahi he 250 tausani kānaka. Ua lawe ka ʻohana i ka inoa ma ke noi a ka pope], ke noho nei ia ma ia, i ka hoʻomaka ʻana o Dekemaba 2013 he mea pōʻino - ua hoʻomaka ka 6 mau keiki kāne i ke ʻano maʻi maʻi type. I ka manawa mua, ua loaʻa nā mea āpau, e like me nā poʻe āpau - ka maʻi koʻikoʻi o ke keiki, ka koko koko 12,7, ka mālama ola olakino, a aneane 11% ua hoʻohiki ʻia ka hemoglobin glycated. Puhi ka poʻe kauka i ke kō, hāʻawi ʻia nā dosis like me ka insulin, hāʻawi i ka ʻikepili no ka hoʻokolokolo ma Kiev a hoʻokuʻu ʻia i ka home.
A laila, ʻaʻole like nā mea āpau. I ke kolu o ka lā, e hoʻihoʻi ana mai ka haunaʻi mua, ke nolo nei ke poʻo o ka ʻohana i ka Pūnaewele. Heluhelu ʻo ia i nā mea āpau i ka lālani, me ka pūnaewele o Diabet-Med.Com. A ma ia lā aʻe i neʻe ʻia ke keiki i kahi ʻai haʻahaʻa haʻahaʻa. ʻIke koke ʻia ka hopena. ʻAʻole lākou i hiki ke hōʻole i nā inikini insulin, akā ua kū ka pono e hoʻopau iā lākou. No ka mea ma kahi e hoʻokomo ai i ka inika inā he kōpō ke koko e hoʻopaʻa ana i ka 5-5.5 mmol / l ...
Ua hoʻouna aku ke poʻo o ka ʻohana i ka leka mua ma ka lā ʻeono, i ko lākou hoʻāʻo ʻana i ka ʻai haʻahaʻa-haʻahaʻa. Ua maopopo ia mākou he haʻahaʻa loa ia i ke kō, a ua pāpā ʻia nā kauka e kūʻē iā ia. I nā hebedoma i hala aʻe, ua hoʻomau ʻo ia e hoʻouna i nā leka peppy. Hiki ke kōkua i kahi mea hoʻohaʻahaʻa haʻahaʻa-haʻahaʻa haʻahaʻa: aia kahi keiki i ka kōkō o ka 4.0-5.5, ʻaʻole pono nā ʻōlelo inikua. E hele i kahi meaʻai me ka ʻohana holoʻokoʻa, aʻo e kuke i nā ʻano kīʻaha maikaʻi. ʻO ka manaʻo e pili ana i nā mana noʻonoʻo a me nā ʻano kūpono o nā kauka ke lūlū ...
Ma hope o 3 mau mahina, i ka lā 2 ʻApelila 2014, ma nā ʻōlelo i kākau ʻia "ketoacidosis Diabetic," kākau ʻo Ivan ua loaʻa ke keiki i ka acetone i loko o ka pīpī, ma kahi ʻano maʻamau. I kēia hihia, ʻaʻohe hōʻailona o ka ketoacidosis, kahi kūlana o ke olakino ka maʻi maʻamau. Ua ʻōlelo ʻia iā ia inā ʻoe e hāhai i ka ʻai haʻahaʻa haʻahaʻa, a laila mea maʻamau kēia, pono ka acetone i loko o ka pāʻai a me ka manawa āpau. Ua manaʻo ʻia he pōʻino ʻole kēia, no ka mea ua hoʻokaʻawale ke ʻano o ke kanaka no kēlā ʻano kūlana. ʻAʻole pono kahi hana a hiki i ke kō o ke koko maʻa mau.
Ua wehewehe ʻo Ivan ko ka maikaʻi loa o ke kō - 4.0-5.5, ua hōʻemi ʻia ka hemoglobin glycated i 5.5%. Hoʻomaka lākou me ka wai nui o ka wai i ke keiki me ka wai - a me ka acetone i loko o ka urine i hōʻemi, a i kekahi manawa hoʻāʻo ʻia nā hōʻike hoʻāʻo ʻole i ka mea ʻole. Hoʻomaopopo nā kauka e hānai ana i kahi kaila keiki e hoʻoneʻe i ka acetone, akā ʻaʻole hele nā mākua. Ma ʻApelila 10, 2014, ua kamaʻilio kūkākūkā me ka ʻohana me kona ʻohana [hoʻopau i kona inoa ma ke noi o ka pope] ma o Skype. Aia ma lalo kahi huaʻōlelo o kēia nīnau ninaninau. Mea hoihoi paha ia ka ʻike a me ka pono o nā poʻe mākua a me nā mākua o nā keiki me ka maʻi āpau 1. Aia kekahi mau ʻōlelo ma lalo o ka ʻōlelo.
Acetone i loko o ka urine me kahi meaʻaiʻaiʻai haʻahaʻa
- ʻO ka mea mua aʻu e makemake ai e nīnau. ʻĀnō, ua lohe ʻoe i kahi acetone o ke keiki ma ka ʻāpana, a ke kākau nei wau iā ʻoe e hoʻomau ʻo ia. He aha kāu e hana ai no kēia?
- Hoʻohui mākou i nā wai he nui, hoʻomaka ke inu i ke keiki, i kēia manawa ʻaʻohe acetone. Ua hoʻāʻo hou ʻia i kēia lā, akā ʻaʻole ʻike mākou i ka hopena.
- Ua hoʻāʻo maikaʻi ʻia? Ke koko a i ʻole urine?
- loiloi urine no ka hoʻopuka ʻana i ka glucosuric.
"Ua helu hou ʻoe iā ʻoe ma kēia ʻano?"
- ʻae
- No ke aha?
- ʻO ka mea i hala hope loa, ua hōʻike nā hōʻike ma ʻelua o ʻekolu mau mea pono ma ka acetone. Nīnau lākou e hāʻawi hou ʻia, a hana mākou i kēia no ka hakakā ʻole ʻana me ke kauka.
- No laila ma hope o nā mea a pau, e hoʻomau ana ka acetone i ka urine, ua wehewehe aku au iā ʻoe.
- I kēia manawa ua hoʻomaka ke keiki e inu i nā wai he nui, kuke wau iā ia i ka hua kanu. Ma muli o kēia, ʻaʻohe acetone i loko o ka urine, ʻo ka liʻiliʻi ma ke ʻano o nā hōʻike hoʻāʻo, ʻaʻole naʻe wau ʻike maopopo i nā hōʻike i hōʻike ʻia.
- He hana nui anei kāu i ka acetone ma nā ʻanuʻu?
- ʻAe, ʻaʻole iki ka hopena o ka hōʻike hōʻike. Ma mua, ua hoʻāla ʻo ia i ka liʻiliʻi, he kala pink ʻalupalu, akā i kēia manawa ʻaʻole ia e haki maoli. Akā ʻike wau inā i ka wā e inu ai ke keiki i nā mea liu loa, a laila puka liʻiliʻi ka acetone. Inu nui ʻo ia i nā wai - he mea wale nō, ʻaʻohe acetone.
- He aha nā mea e hōʻike ʻia ai ka acetone? Ma ka papa hōʻike ʻehā a i ʻole ke olakino paha?
- Ma luna o ka palapala hōʻike, ʻaʻole mākou e ʻike. ʻAʻole ʻike ʻia ia e ka ʻoluʻolu a i ʻole e ke olakino o ke olakino o ke keiki.
- Ua maopopo ʻoe e hele mau ka acetone i nā pae hōʻike o ka urine i ka manawa āpau? A no ke aha e makaʻu ʻole ai i kēia?
- ʻAe, ʻoiaʻiʻo, ua loli kē ke kino iā ia iho i kahi ʻano ʻokoʻa.
"ʻO kēia kaʻu e kākau nei iā ʻoe ... E haʻi mai iaʻu, ʻike anei nā kauka i kēia mau hopena?"
- Pehea?
- analela urine no acetone.
- He aha ka mea i lilo ʻo ia?
- ʻAe, ua paʻa loa ia.
- Ma kaʻoiaʻiʻo, ʻaʻole hopohopo ke kauka no kēia, no ka mea ʻaʻole ka glucose i ka pā. Mo lākou, ʻaʻole kēia he hōʻailona o ka maʻi diabetes, no ka mea, ʻaʻohe glucose o ka maʻi. Wahi a ia, ke ʻōlelo nei lākou, ʻo ka hoʻoponopono ʻana i nā mea kanu, e hoʻokaʻawale i ka ʻiʻo, ka iʻa, ka ʻai ʻana. Manaʻo wau - ʻae, maopopo ...
"E maopopo ana ʻoe ʻaʻole pono e hoʻohuli i ka cereal?"
- ʻO kaʻoiaʻiʻo, ʻaʻole mākou e hele.
"Ke haehae nei au inā paha e hoʻopili lākou i ka hāleʻe i loko o ke keiki i ke kula a nalowale ka acetone." Me lākou e lilo ai ia. Makaʻu wau inā hiki paha kēia.
- [Mom] E hele wale ana mākou i ke kula ma Kepakemapa. I Kepakemapa, hele wau i kahi hoʻomaha a laila lākou e noho ma laila no hoʻokahi mahina, e ʻae me ke kumu. Manaʻo wau ʻaʻole ke kumu kauka, aʻoi aku lākou.
- E kali. ʻAʻole mālama mai ke kumu. ʻAʻole hōʻili ʻo kāu keiki i ka insulin, ʻo ia hoʻi, ʻaʻohe pilikia o ke kumu. E ʻai ke keiki i kāna ʻiʻo -ʻa me kaʻole o ka pale, ke kumu kukui ke kumu māmā. Akā e ʻōlelo mākou he kahu hānai ma ke keʻena. ʻIke nei ʻo ia ua loaʻa ka acetone i ke keiki i loko o kāna pāʻai. ʻOiai aia ka liʻiliʻi o ka acetone a ʻaʻohe manaʻo ke keiki i kekahi mea, e loaʻa ka moliki i ka reflex - hāʻawi i ke kō i loaʻa ʻole kēia acetone.
- [Papa ʻaha] a pehea lā e ʻike ai ʻo ia?
- [Mom] Makemake wau e nānā i ka hopena o ka hoʻoili a mākou i hala ai i kēia lā. ʻAʻole paha mākou e hōʻike i ka acetone i ka manawa āpau. Ma hope o kēlā, inā lākou e noi iā ʻoe e hāʻawi i ka urine i ka hoʻopuka i ka glucosuric, e hāʻawi mākou ia ia, akā i kēia lā e hoʻolilo nui mākou i ke keiki me ka wai.
- I loko o kou papa hoʻāʻo ʻana no ka acetone, ʻelua mau mea o ka nui o nā elima. A laila aia kekahi ma laila, akā e mana mau paha ...
- He mea maikaʻi loa ia, no ka mea, ʻaʻole i hōʻike ka mea kauka e pili ana i kēia hopohopo. Ua ʻōlelo ʻo ia e hoʻoponopono i ka meaʻai, akā, no ka hoʻopili ʻole kēia.
- Ua hāʻawi iā ʻoe i ka ʻōlelo i kuhikuhi ʻia i loko o kāna mau ʻōlelo: inā he acetone - hāʻawi i nā hāmeʻe. Aole oe e hana aku, a hoomaikai aku i ke Akua. Akā ʻo kekahi ʻē aʻe o ka makemake maikaʻi e lawe i kāu keiki i ke kula a ʻōlelo aku, e ʻai, eʻai ai i nā kime, nā kuki a i ʻole nā mea ʻē aʻe e loaʻa ai kēia acetone. He pōʻino kēia.
- [Māme] Ma ka laulā, eʻoiaʻiʻo, ua makaʻu wau i ke kula, no ka mea he keiki kēia, ʻaʻole hiki ke hoʻokaʻa ʻia ...
- Pehea?
- Hiki iā ia ke ʻai i kekahi mea hewa i kekahi wahi. Loaʻa iā mākou kahi manawa e ʻai ai, hiki ke ʻaihue ma ka home. A laila hoʻomaka mākou e hoʻolaʻa i ka papa ʻaina, hāʻawi iā ia i nā walnuts, a me kekahi manawa i hoʻomaha ʻia ai ʻo ia.
- I ka manawa hea i? I ka manawa hea e hoʻoiho ai ʻoe i ka insulin, a i ʻole ma hope, i ka manawa i hoʻololi ai ʻoe i kahi meaʻai haʻahaʻa?
- Ua loaʻa iā mākou ka insulin no nā lā 3 wale nō. Ua hele mākou i ka haukapila i ka lā 2 Dekemaba, ua kuhikuhi ʻia mākou i ka insulin mai ka lā nui loa, ua hōʻemi ʻia mākou i ka inikua ʻelua, ua hele au i ka haukapila me ia mai ka ʻaina awakea. ʻAno koke ka manaʻo o ke keiki, ʻo ka hopena i ka insulin.
"He wai kau nui kona, he aha ka hana a ka insulin me ia ..."
- [Mālama] ʻAe, ua loaʻa iā mākou kahi hōʻike koko wikiwiki a laila ma ke kōkō, ʻo ka kōpaʻa he 12,7 i koʻu manaʻo, A laila hānai wau i ke keiki pilaf ma ka home a ua lawe pū nō hoʻi iā mākou i ka haukapila. ʻO ka hopena, lele ka gula i ka 18.
- [Pāpā] a laila heluhelu wau a noʻonoʻo - pehea wau i hana ai? No ke aha ke kō he 12 a lilo i 18?
- [Mom] No ka mea ʻai 'o ia i pilaf a ua hele mākou i ka haukapila me ka holi 18.
"No laila, ʻoiai ka acetone, ke hoʻomau nei ʻoe i kaʻai haʻahaʻa-haʻahaʻa?"
- Ae o na.
- A ʻaʻole ikaika nā kauka e hoʻoneʻe i kēia acetone?
- ʻAʻole, hōʻike ʻo ke kauka i kahi hana.
Hiki ke mālama ʻia ka maʻi diabetes type 1 i nā keiki me ka ʻole o nā inikua o kēlā me kēia lā o ka insulin, inā ʻoe e hoʻololi i kahi kīʻaha haʻahaʻa-lā mai ka lā mua o ka maʻi. Loaʻa kēia ʻano loea i ka Lūkini, ʻaʻohe manuahi.
ʻO kahi meaʻai no kahi keiki me ka maʻi ʻano type 1 i loko o ke ʻano hoʻonaʻauao a me ke kula
- ʻO ia, ʻaʻole ʻoe i hele i ke kula, akā e hele wale, pololei?
- ʻAe, hiki i kēia manawa ke hele nei mākou e hoʻomākaukau, a iā mākou nō i nā mea a pau.
- A i ka kindergarten?
- Mai ka kindergarten lawe mākou iā ia.
- Aia koke?
- ʻAe, lawe koke mākou; ʻaʻole ia i hele i ka lā i ka kindergarten.
- No ke aha?
- No ka mea ke ʻōlelo nei lākou: ʻo nā meaʻai i hāʻawi ʻia i loko o ke ʻano momona i kūpono no nā keiki maʻi maʻi. Aole makou e ae. ʻAʻole kūpono loa ia. ʻO mākou i ka hale hoʻokipa - ka papaʻaina 9 - hāʻawi i ka hoʻohui me ka kō.
- ʻO ia, i loko o ka kindergarten, ʻaʻole ʻoe e ʻae i ka hānai e pono ai?
- ʻAe, ʻo ka mea āu e kamaʻilio nei ... e kuke nei au i kahi keiki i kēlā me kēia lā ...
"A no ʻoe hoʻi e kiaʻi ai iā ia ma ka home?"
- ʻAe, mālama mākou i ka home, ke komo nei ke kupuna kāne, a paʻa loa ke keiki me mākou me mākou, ua lawe mākou iā ia mai ka hale paʻahana.
E hōʻemi i ka holi i ka maʻamau no mākou iho, a laila i nā hoaaloha
- ʻO kou mea 'ai - hana nui ia ... He kīpoki maʻi kaʻu 2 ʻokoʻa. ʻAʻole ʻo ia i hoʻolohe mai iaʻu i ka wā mua. ʻLelo ʻo ia ua hiki iā mākou ke loaʻa i ka palaʻai, a me nā mea āpau. I ka wā mua ua kāhea ʻo ia iaʻu. Puhi kāna kāne, wahi a lākou, kāhea iā lākou, kūkākūkā inā hiki iaʻu ke loaʻa i kēlā mau huahana a i ʻole kēia. Ua hoʻolohe mai ʻo ia iaʻu, a ʻai kā lākou i ke ʻano o kā kā mākou keiki.
"Ua hāʻawi anei ʻoe iā lākou i ka pūnaewele o ka pūnaewele?"
- ʻAʻohe o lākou pūnaewele
- ʻAe, ʻike wau.
"ʻAʻole holomua lākou." Hoʻolālā lākou, ʻoiaʻiʻo, akā kēia mau kānaka e lohi ana, no laila ʻaʻole hiki ʻole loa. Akā, ke hoʻolohe mai lākou iaʻu a kāpae i ka ʻai ʻana i ka mea a nā kauka i hōʻike mai ai. I kēia iā 4-5 kaʻai gula, a ʻo kēia mea me ka pākeke.
- ʻO ia, ʻaʻole ʻoe ʻeha i ke ola, ke ʻōlelo nei hoʻi ʻoe i nā hoa?
"Ke hoʻāʻo nei wau, ʻaʻole hoʻolohe maoli ka poʻe."
"Mai hopohopo no kēia." No ke aha ʻoe e hopohopo nei no lākou? E hopohopo nei iā ʻoe iho ...
"Hana mākou i kēlā." He maʻamau mākou i ka hopena o ka hopena. He hoaaloha mākou - type 1 diabetic mai ka wā kamaliʻi. ʻAʻole wau ʻike i ka hoʻokokoke ʻana iā ia a ʻōlelo i kēlā. ʻAi ʻo ia i nā mea a pau ma ka lālani, ʻaʻole wale nō e ʻai ai ... ʻAʻole hiki ʻole ke wehewehe i kahi kanaka, ʻoiai ua loaʻa iā ia ka hypoglycemia a ʻike mākou iā ia.
"Ua haʻi anei ʻoe iā ia?"
- ʻAʻole, ʻaʻole wau i ʻōlelo aʻe, ʻoi loa, ʻaʻohe pono.
"Mai hopohopo lākou a pau." ʻO wai ka mea makemake - loaʻa iā ia. Ua ʻimi ʻimi ʻoe. E haʻi mai iaʻu, ʻo wai ka mea āu i ʻōlelo ai? E ʻōlelo ʻoe he hoa paʻi o ke ʻano maʻi ʻoi aku 2. ʻO ia wale nō anei?
- He mea maopopo kēia, a aia kekahi kaikamahine i hālāwai ai mākou i loko o ka haukapila. Makemake wau e kono iā ia i koʻu home a hōʻike i ka mea āpau. Ma kēia manawa ua kamaʻilio ʻo ia, a ʻoi aku paha ia i kahi mea haʻahaʻa.
"ʻAʻole anei lākou ma ka Pūnaewele?"
- ʻAe, ʻaʻohe o lākou kamepiula, hele mai ia i ke kelepona. Aia nō wau i nā pilina me ka haukapila, i ko mākou hiki ʻana ma Kiev, ua hālāwai au me koʻu makuahine mai Lutsk. Ua noi ʻo ia iaʻu e ʻike i ka ʻike.
Pehea e hoʻomaʻamaʻa ai i kāu keiki i ka ʻai
- Loaa koke ke kane ia oe, i ka la mua loa. Ua hele mākou i ka haukapila i ka Pōʻakahi, a ma ka hopena o ka pule i hoʻomaka mākou e hōʻole i ka insulin. ʻO ka manawa mua lākou hōʻole ʻia, no ka mea, ma hea e wailua i ka inika inā he kō ka kō o ka 3.9?
- Mālama [Papa) Ua hānai iā ia i ka borsch me ka kāpeti, a laila hiki i ka lāʻau ke nānā i ka insulin, e like me ka mea i manaʻo ʻia e nā maʻi olakino, a hoʻomaka ke keiki hypoglycemia. E kū nei i ka manawa e loaʻa ai ka 2.8 gula ma nā ʻōlelo o kahi glucometer, he mea nui aʻe kēia mea.
- [Mālama] I ke ʻano o ka pōpilikia o ke keiki, weliweli loa wau.
"Makemake wau e nīnau: pehea ʻoe i ʻike ai iaʻu?" No ke nīnau, ʻaʻole anei ʻoe i hoʻomanaʻo?
- [Papa] ʻAʻole wau e hoʻomanaʻo, ua ʻimi au i nā mea āpau ma ka lālani, ke nānā nei wau i ka Pūnaewele i nā maka piha i koʻu mau maka. Noho ʻo ia no ʻekolu lā, e heluhelu ana i nā mea āpau.
- [Māmā] Me mākou i ʻike ai iā ʻoe, i kēia manawa, ʻaʻole ʻoe e hoʻomanaʻo, no ka mea, ʻaʻole paha i hiki iā mākou ke noʻonoʻo, akā ua uē wale nō.
- He laki maikaʻi loa ʻoe, no ka mea ua nāwaliwali ka pūnaewele, paʻakikī ke loaʻa. Pehea ka hana ʻana o kāu keiki i ke kula? Ma laila ʻoi aʻe ʻo ia kahi e kūʻokoʻa ai i kēia manawa, a e kū hou mai nā hoʻowalewale. Ma ka lima ʻē aʻe, e hoʻāʻo kekahi o nā pākeke e hānai iā ia i laila ʻaʻohe acetone. I kekahi ʻaoʻao, e hoʻāʻo ke keiki iā ia iho. Pehea kou manaʻo i kona ʻano?
- Ke manaʻolana nei mākou iā ia, no ka mea he koʻikoʻi a kūʻokoʻa hoʻi ʻo ia. I ka wā mua, mahalo nā mea āpau i kona ahonui. Ua ʻai nā keiki ʻē aʻe i loko o ka lumi hānai i nā ʻuala, nā maiʻa, nā ʻeke, ua noho wale ʻo ia ma laila, ua hele i kāna ʻoihana a ʻaʻole hoʻi i hana iki. ʻOiai ka meaʻai ma ka haukapila iʻoi aku ka maikaʻi ma mua o ka home.
"Ua hoole ʻole anei ʻo ia i kēia mau mea maikaʻi a pau, a i ʻole ʻoe e hoʻoikaika iā ia?"
- Ke hana ʻia nei ka hana ʻo ia he ʻeha ʻo ia mai ka insulin. Hoʻomanaʻo ʻo ia i kēia ʻano no ka manawa lōʻihi a ʻae i nā mea āpau, inā ʻaʻole ia e ʻoka ʻia me ka insulin. I kēia manawa i piʻi aku ai ʻo ia ma lalo o ka papaʻa, e hoʻolohe ana i ka ʻōlelo "insulin." I mea e maikaʻi ʻole me ka insulin, pono ʻoe e kāohi iā ʻoe iho. ʻIke ʻo ia e pono ʻo ia. ʻO ka mea kūpono loa iā ia - ʻaʻole no ia, a ʻaʻole no ka makuakāne a me aʻu, a me ka hana kino.
"E hoihoi nō ka kiaʻi iā ʻoe i ka hāʻule, pehea e holo nui ai, ke kū ʻole ʻo ia i ke kula i nā mea e pili ana kaʻai."
"Mālama mākou iā mākou iho a hāʻawi iā ʻoe i manawa kūpono e nānā ai iā mākou."
Pehea e hiki ai i nā mākua o kahi keiki me ka maʻi maʻi e hui pū me nā kauka
"Ua haʻi anei ʻoe i nā kauka i kekahi mea e pili ana i kēia kīhini?"
"ʻAʻole lākou e hoʻolohe." Ma Kiev, ʻike wau i kahi manawa iki, akā ua hoʻomaopopo koke ka hiki ʻole ke haʻi iki i kēia mea. Ua haʻi maila lākou iaʻu: inā e hoʻonui ka huahana i ke kō no ke keiki, a laila ʻaʻole ʻoe e hōʻole i kēia huahana i kekahi ala. ʻOi aku ka maikaʻi ke hoʻonāuki aku i ka insulin, akā e hānai i ka pēpē.
- No ke aha?
- [Mom] ʻaʻole au i maopopo.
- [Pāpā] ʻO koʻu kaikuahine he mea lapaʻau ponoʻī iā ia, he lāʻau lapaʻau, a eia mākou e hōʻino ʻino nei no nā lā mua. Ua koi ʻo ia a hiki koke i ka wā e hoʻololi ai mākou i ka insulin. Ua hoʻonui ʻia iā mākou me ka manaʻo e ʻōlelo nei ʻoe he keiki maʻi maʻi a he ala hoʻokahi kāu - i ka insulin.
- I kahi ala, kūpono ʻo ia, hiki ke hiki i ka wā i hala, akā manaʻo mākou no ka mea maikaʻi loa, ʻoiaʻiʻo. He nīnau nui: e hānai ʻo ia i kāu keiki kīnā ʻole ma kāna pono iho? ʻAʻole pono ʻoe e hopohopo no ka mea e koi ai iā ʻoe, akā e pili ana i ke kūlana i ka wā e hānai ai ʻo ia iā ia iho.
- ʻAʻole e hana kēia, no ka mea ua noho lākou ma kekahi mokuʻāina.
- Ua ʻōlelo lākou iā ʻoe e hana i nā hoʻokolohua a hōʻike iā lākou i ke kauka me kekahi mau lae, pololei?
- I hoʻokahi mahina, hele i ke kauka a lawe i ka glycated hemoglobin i kēlā me kēia 3 mahina.
- Hele paha ʻoe i ke kauka me ka loaʻa ʻole o nā hoʻokolohua? E hele wale a pau?
"ʻAe, e hele wale ana."
"A? O ka mea e hana? I?"
- He aha ke hana - hoʻolohe, nānā, nīnau ʻia. He aha kāu mea ʻai? Pehea kou manaʻo Ua holo anei ʻoe i ka lua i ka pō? Makemake ʻoe i kahi wai? ʻAʻohe ʻoe maikaʻi ʻole? Noho ke keiki a ʻaʻole maopopo iā ia e ʻōlelo e pili ai i ka wai, no ka mea, hoʻoweliweli wau iā ia e inu. ʻO ka meaʻai Protein - ʻo ia ka mea e pono ai ka wai hou aku. I kēia manawa ʻaʻole ia i ʻike i ka mea e ʻōlelo ai. ʻO ka ʻōlelo iaʻu ʻaʻole inu a ʻai paha i ka inu ʻana i ka hapa he nui ka pane? ʻ teachlelo aku wau iā ia - keiki, e like me ia. A pehea wau e hānai ai iā ia ... Ke nīnau nei lākou iā ʻoe e hānai iā ia? Hoʻomaopopo wau - hānai wau i nā kānaka a pau: mau iʻa, borscht, nā mea kanu…
- Hana maikaʻi. ʻO ia hoʻi, ʻoi aku ka maikaʻi o ke kaʻa ʻole e pili i kēia kīhini holoʻokoʻa, pololei?
- ʻAʻole, ʻaʻole lākou makemake e hoʻolohe i kekahi mea. ʻO kaʻu kāne i nā lā mua i hele hewa loa. Ma hope o nā mea a pau, pono e noʻonoʻo ke kauka, akā ʻaʻohe mea. ʻAʻole hiki iaʻu ke ʻae aku i koʻu kaikuahine. Akā ʻo ka hopena nui no mākou. I Dekemaba i ka makahiki i hala aku nei, he 9,8% ka glycated o ke keiki a ka hemoglobin, a ua hala i ka lā Malaki - ua lilo ia i 5.5%.
ʻO ka nānā ʻana a me ke kīnā no ka maʻi āpau 1
"ʻAʻole ʻoe e hele hou ana i ke haukapila no nā haukapila, pololei?"
- Nope.
- He maopopo no ia pono ole oe. ʻO ka nīnau, kau mau ke kauka iā ʻoe i nā manawa hele i ka haukapila a i ʻole ʻaʻole?
- Hiki iā lākou ke hoʻoikaika wale i nā mea pilikia. ʻAʻole lākou i hāʻawi mai iā mākou i ka maʻi kīnā, no laila ʻaʻole hiki iā lākou ke hoʻoikaika iā mākou e hele i ka haukapila. Ma ke kumu?
- Ke hāʻawi wale nei ka pōʻino i ka poʻe i loaʻa nā hopena. ʻAʻole wale ka maʻa maʻi 1, akā, me nā hoʻopiʻi.
- ʻAʻole, hāʻawi koke lākou iā lākou i nā poʻe a pau i hoʻoponopono i ka insulin.
"Nui aloha ..."
- No ka mea ʻole ʻo Kiev i kuhikuhi aku i ka insulin no mākou, ʻaʻohe meaʻokoʻa mākou. Ua haʻi ʻo Kiev: kahi keiki penei he mea aloha ke kauʻana i ka insulin iā ia. Ua nānā lākou iā mākou no hoʻokahi pule. Hoʻokomo mākou i nā insulin-free ma kahi meaʻai momona. Akā, ke ʻōlelo nei ke kauka ʻaʻole hiki iā ia ke loaʻa i ka manawa o ke ao e wili i ka micro-dosis o ka insulin.
- ʻO ka nele ke kīnā he mea nui loa, ʻaʻole ia e hōʻeha i ka loaʻa.
- ʻAe, ua noʻonoʻo pū mākou iā ia.
"No laila e ʻōlelo ʻoe iā lākou ma laila."
- Me kā mākou hoa kauka?
- ʻAe, ʻae. ʻAʻole i ʻōlelo kekahi e pono i ke keiki ke hoʻonohonoho i ka lele i loko o ka huka e kuhikuhi ai i ka insulin, a pēlā aku. Akā e ʻae - maikaʻi loa ia iā ʻoe, no ka mea, e hāʻawi ana i ka uku kūpono o nā pōmaikaʻi. Manaʻo wau ua hāʻawi wale ʻia kahi kīnā i nā mea i loaʻa i ka hopena o ka maʻi maʻi. A inā e ʻōlelo ʻoe ua hāʻawi lākou i nā poʻe a pau i kahi lā ...
"ʻAe, hāʻawi koke lākou iā lākou, a ua lākou nei." Inā ʻaʻole mākou i hele ma Kiev, e hāʻawi ʻia mākou i nā mea kīnā. ʻAʻole wau e hele aku ma Kiev, e ʻike ana i kaʻu mea i ʻike ai. Ma muli o ka hōʻoluʻolu o ka haukapila i loko o ka haukapila, paʻakikī mākou i kahi hebedoma.
E hoʻomalu i ka maʻi type 1 i loko o kahi keiki me ka loaʻa ʻole o nā inikua o kēlā me kēia lā ka nui. Akā pono ʻoe e hahai ikaika i ka pau ʻana. ʻO ka mea pōʻino, ʻaʻole kōkua ke ola i kēia.
Hoʻomaʻamaʻaʻole no nā maʻi maʻi type 1 i nā keiki
- Ua hala mākou i ka hoʻāʻo ʻo GAD antibody ma Kiev [ʻo ia kahi hōʻailona o ka luku autoimmune o nā pihi beta pancreatic, ke loaʻa nei i ka hapa nui o nā mea maʻi me ka maʻi maʻi type 1). A i hoʻokahi makahiki ke hoʻolālā mākou e hōʻike hou i kēia ʻike.
- No ke aha?
- ʻO ka mua, e hāʻawi mākou i ka C-peptide. Inā hoʻohuli ʻoi aku ʻoi aku i ʻoi aku ka kiʻekiʻe ma mua o kēia manawa, a laila e hoʻokau pono e nānā hou i nā antibodies - ʻoi aku ka nui, liʻiliʻi a ʻokoʻa paha helu helu i koe.
"Ua hoʻomaopopo ʻoe, ʻaʻole hiki i kēia mea ke hana i ko lākou manaʻo." ʻAʻole maopopo mākou i ke kumu i kū ai lākou. Hiki i kekahi ʻano o nā maʻi a i ʻole intolerance gluten. ʻIke anei ʻoe i ke ʻano o gluten?
- ʻAe, ʻae.
- He ʻōmole ka Gluten i loaʻa i ka palaoa a me nā cereal ʻē aʻe. Aia kekahi manaʻo e ʻae ʻole ka poʻe maʻi maʻi i kēia, a me kēia ke kumu i ka hōʻeha ʻana o ka ʻōnaehana pale i ka pancreas.
- [Papa Hana i kekahi mau 'ikepili hou. ʻOi loa, ʻaʻole e kū ka hopena i ka gluten, akā ma ka casein - ka momona o ka waiū o ka pipi.
- ʻAe, aia hoʻi i ka waiū ka waiū, ʻo ia ka helu 2 o hope ma hope o ke kō aʻe. ʻO ia, ʻo ka hana, hiki iā ʻoe ke hoʻohui i ka ʻai haʻahaʻa haʻahaʻa me kahi ʻai liʻiliʻi o ka gluten a me ka casein-free i ke keiki. Akā ke kākau ʻia nei kēia mau ʻōkala a pau me kahi pitchfork.
"Akā hiki iā ʻoe ke hoʻāʻo."
"ʻAe, akā he nui nā hemorrhoids." Inā ʻoe e hōʻole i nā chees, a laila ʻoi aku ka paʻakikī o ka meaʻai.
- ʻAe hōʻole mākou i nā chees. Hana mākou i nā hana aerobic. Ua kākau ʻo Zakharov ka mea inā he haʻahaʻa o ka wai koko o kēlā me kēia lā ma mua o 8.0, a laila hiki iā ʻoe ke hana me kahi kanaka. E hoʻomau i ka hoʻouka autoimmune me ka hana aerobic - a hoʻomaka hou nā mea beta e ulu hou. I kēia manawa ua hoʻokomo wau i nā hana hanu ma Strelnikova. Hoʻopau lākou i nā antibodies pōʻino.
- Ua kākau ʻia kēia a me ka pitchfork ma luna o ka wai. Inā loaʻa kekahi i kahi ala e mālama ai i ka maʻi maʻi type 1, e loaʻa koke iā ia ka Nobel Prize. ʻIke maopopo mākou i kahi liʻiliʻi haʻahaʻa-hoʻemi haʻahaʻa i ka liʻiliʻi o ke kō. Akā mai hea mai ke ʻano maʻi maʻi type 1 - ʻaʻohe manaʻo o mākou. Hōʻalo wale kekahi mau manaʻo. Oe ke hoʻokolohua me nā hoʻomaʻamaʻa, akā ʻaʻole makemake i kahi kiʻekiʻe no kēia.
- Inā mākou e mālama i kahiʻai haʻahaʻa-haʻahaʻa, a laila hiki iā mākou ke ʻai i kēia ala no ke koena o ko mākou ola.
- ʻae, pono e noho pēlā, no ka mea e hana nei nā mea āpau. Pono wale ʻoe e wehewehe i ke keiki no ke aha ʻole ʻoe e ʻai ai i nā meaʻai i pāpā ʻia. Aia koke ʻoe e ʻai i kekahi bun, ke kūpaʻa nei ka syringe insulin e kokoke mai iā mākou.
- ʻAe, aia nō i nā mea āpau i kā mākou pouaka.
- ʻAe, maikaʻi loa kēlā. Mahalo no ka makemake e ʻike mai ʻoe iā ʻoe i kēia manawa, ua aʻo nō wau. ʻAʻole au i manaʻo ua loaʻa i kāu maʻi maʻi ke ʻano maikaʻi o ka pūnaewele ma Kirovograd.
- ʻAe, ʻaʻohe hoa o kā mākou mau hoa, ua loaʻa.
"... no laila he mea paʻakikī loa iaʻu ke hele aku iā lākou." Mahalo i ka nīnauʻōlelo, he waiwai nui loa ia no ka pūnaewele. E kamaʻilio mau mākou a e kamaʻilio, ʻaʻohe mea nalowale.
"A mahalo iā ʻoe."
- Mai ʻoluʻolu mai lawe aku ʻoe i nā mea hoohalike hua, ke loaʻa nei ko lākou mau kaaka, maikaʻi ke hāʻawi aku i nā kī lāʻau.
- Ke ho'āʻo nei mākou āpau, ʻaʻole i hoʻonui ka gula.
- Mai nā hua a me nā huaʻai, ʻeli ʻia nā huapalapala a hoʻokahe i ka wai. E kau ana ʻo ia i ka pancreas, inā paha e mau ana.
- Aloha, mahalo.
- Aloha ʻoe, malia i ko mākou kūkākūkā i kēia lā - e lilo ia i pōkā ʻikepili.
Hoopuu
No laila, noho ke keiki a me kāna mau ʻohana i kahi wā meli nani ia, me kahi kōnō maʻamau maʻamau a ʻaʻohe insulin injections i nā manawa āpau. ʻ saylelo aku nā mākua ʻaʻole kekahi o nā keiki me ka maʻi maʻi maʻi 1 e hoʻomoe ana me kā lākou keiki i ka haukapila i mea ʻole penei. ʻAno maʻi maʻamau nā maʻi āpau āpau, a ʻaʻohe mea i hiki ke kāpae i ka injecting insulin, ʻoiai nā puke kākau e ʻike pinepine ʻia i ka wā o ka honi.
ʻO ka ʻohana ka mea i lawe i ka inoa ma ka noi a ka pope] hauʻoli loa i nā hopena i hāʻawi ʻia e ka meaʻai haʻahaʻa-haʻahaʻa. ʻOiai me ka hopohopo o ka acetone i loko o ka urine, ʻaʻole lākou e loli e pili i nā hana aʻoaʻo.
Ua ʻōlelo ʻo Kauka Bernstein ʻo ka hoʻohana ʻana i kahi meaʻai haʻahaʻa-kaohiʻo ka lōʻihi e hiki ke hoʻolōʻihi i ka manawa o kahi meli me ka ʻaʻole i hoʻokomo i ka insulin no ka maʻi type 1 no nā makahiki he mau makahiki, a i ʻole ke ola ʻana. E manaʻolana kēia e tupu ana. Hoʻomau mākou i ke nānā ʻana i ke kūlana.
Ke hoʻāʻo nei ke poʻo o ka ʻohana i ka hoʻomaʻamaʻa ʻana me ka mālama ʻana i ka maʻi type 1 me ka hoʻomaʻamaʻa. Ke kānalua nei wau e pili ana i kēia. ʻAʻohe mea i hiki ke hōʻoia e hoʻōla i kekahi hana pilikino i ka hoʻoulu ʻana i ka lele autoimmune ma nā cell beta pancreatic. Inā kūleʻa koke kekahi kanaka, manaʻo wau e hōʻoiaʻiʻo ka Pōʻī Nobel i kēlā kanaka. Ma kekahi ʻano, ʻo ka mea nui i ka haʻalele ʻole o ke keiki i ka meaʻai haʻahaʻa-haʻahaʻa, ua ʻike mua mākou e kōkua ana. I kēia kūlana, he hoʻomaka nui ka kula. I ka hāʻule, e hoʻāʻo e hui hou i koʻu ʻohana i ʻike e pehea e hele ai lākou. Inā makemake ʻoe e kahakaha i nā lono ma ka leka uila, e kākau i kahi ʻōlelo no kēia a i ʻole kekahi mea ʻatikala, a e hoʻohui wau i kāu wahi helu ma ka papa inoa leka.
